Our day at the MRI was long but successful. Sam needed longer than expected to wake up so we were at the hospital from about 9:00am until 4:20pm. Much longer than we expected, but everyone was very nice and attentive to us during our stay. Even arriving home Sam didn't quite have his balance back, but after a good dinner he was up and around again as normal. They gave me my copies of the MRI disks that I need to take to Chicago as I left, so unexpected length and all, I will call the day successful.
I was not expecting to hear any results until our Chicago visit, but was pleasantly surprised by a phone call this morning. The nurse at Sam's pediatrician's office received the films and report (I had not received a report at the hospital) this morning. His pediatrician was out of office so the nurse very kindly went out of her way to take the report to another one of the office's doctors and had him read it so she could give me the results. The report shows no indications of a tethered spinal cord, cyst or lipoma. I am praising God for no additional issues showing up in Sam's spine. Also praising God for the kind and compassionate help I have received from Sam's pediatrician, and specifically her nurse, who has spent a good deal of time handling paperwork for me. While the problems we are dealing with are outside the realm of things they can treat, they have been supportive and proactive in doing everything they can to help us.
Last, nights with the CPAP are going very well. His apneas are consistently about a third of what they were before the CPAP. We can definitely tell the difference during the day. Sam has woken up almost perky a few mornings, which is way out of the ordinary for him. I truly think he sees enough of a difference in how he feels that he would choose to wear it if given a choice. Sam has also developed a real sense of ownership of the machine and it's use. He wants to do everything on his own, and enjoys checking the settings and readings. Praising God again for keeping His hands on us, for everyone's prayers and support, and for allowing us to grow and depend more on Him through all of this. Not expecting any new developments at this point until our August 8th appointment with the Neurosurgeon at Children's Memorial. Thanks for continued prayer.
Praying for you and your family! Praising God for sending you encouraging and helpful people. Christine N.
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