I have been asked a number of times how we are doing, so I thought I better write a quick update. Sam is doing quite well physically since we arrived home. He can walk around the block with no support (just a ready arm incase of a stumble.) He has gotten really good at getting in and out of bed on his own and has even started unconsiously started to roll on his side when sleeping. His pain is becoming more tolerable everyday, and we should be able to go entirely with plain extra strength tylenol and drop his narcotic pain meds in the next couple days. He is able to do more and more on his own every day.
We will be getting a drafting table on loan today to help him prop books and paper for reading and writing. This should help us start getting back into school work a bit more next week. I believe getting back some more normalcy, such as school will be good for him. He is having more times of better spirits, but is still sad and remote often as well. I have started to push a little more to encourage him to do things that are different such as go to a store, go for a walk, go downstairs, play a game with us. It really is getting much better, however, and I can see my Sam shining through again here and there. Part of it is that he is a bit of an introvert, and everywhere we go he gets all sorts of attention and questions. It makes him fairly uncomfortable.
As far as an immediate prayer concern, I would appreciate it if you would pray that we get Sam’s Apnea numbers under control. Our CPAP (the machine that keeps him from stopping breathing overnight) tell us how many times he does stop. His numbers were fine in the hospital, but have been high since we have been home. Needless to say, I am concerned about this. I am working with his neurologist to figure out why, but at this point they have decided the machine is working correctly. So it is either a problem with needing new setting, or a new problem with Sam’s breathing. They have done an overnight monitoring of his oxygen levels and pulse and have found both to be fine, so that is good, it is just unnerving to have those numbers high. Please pray that we could resolve this issue quickly.
We have a follow-up appointment in Chicago this Monday the 19th. They will take x-rays to see that everything is healing well and still aligned as desired. So far, his incision looks great. Dry as a bone which indicates no leaking spinal fluid. Praise God!
Please feel free to use my e-mail or facebook account to wish Sam a happy 11th birthday this Sunday the 18th. I know it will not be quite the circumstances he would like for celebrating, but I know he will enjoy hearing from everyone. I know I will be celebrating by thanking God for Sam and His plan for his life.
No comments:
Post a Comment